Damn. I have a friend that was just diagnosed with ms and reading this helps me understand a little better.
golfy-canadian on
MS is a bitch. It’s been hurting my family for 20 years. I often wonder who I would be today, who my mom would be, and what life would be like if it wasn’t always there, haunting and destroying in the background
gl1ttercake on
Her most troublesome symptoms are very, very similar to my own MS symptoms.
MissSassifras1977 on
I love Christina and her attitude.
She’s always been **that bitch**.
I wish her well. She’s a tough one.
callthesomnambulance on
There’s a real cultural tendency to frame any chronic, degenerative or life threatening illness as some sort of ‚meaning journey‘, in which your suffering facilitates personal growth and unique insights that ultimately enrich your life or you as a person but, while it’s true they do force new perspectives and make you reassess your priorities and your values, they’re mainly just really, really shit, so shit, in fact, that no silver lining could possibly compensate for how much they take from you and how much you just want things to go back to how they were before. I think the ‚meaning journey‘ framing helps people pretend that even these awful things have some sort of purpose or coherence or logic because the idea that everyone everywhere exists with the perpetual threat of utterly random, senseless misfortune hanging over them is profoundly unsettling and upends the ordered, managed world we’ve convinced ourselves we inhabit. It’s refreshing to see someone calling it what it is from such a public platform.
Pedal2Medal2 on
I have extended family members w/MS, several people I know. Family member has the worst type. It’s a terrible disease.
Futureacct on
I’m so confused that in the excerpt of this book she implies that she wonders if anyone will ever love her. I noticed in her podcast she talks about being alone in her room. I thought she was married?
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Damn. I have a friend that was just diagnosed with ms and reading this helps me understand a little better.
MS is a bitch. It’s been hurting my family for 20 years. I often wonder who I would be today, who my mom would be, and what life would be like if it wasn’t always there, haunting and destroying in the background
Her most troublesome symptoms are very, very similar to my own MS symptoms.
I love Christina and her attitude.
She’s always been **that bitch**.
I wish her well. She’s a tough one.
There’s a real cultural tendency to frame any chronic, degenerative or life threatening illness as some sort of ‚meaning journey‘, in which your suffering facilitates personal growth and unique insights that ultimately enrich your life or you as a person but, while it’s true they do force new perspectives and make you reassess your priorities and your values, they’re mainly just really, really shit, so shit, in fact, that no silver lining could possibly compensate for how much they take from you and how much you just want things to go back to how they were before. I think the ‚meaning journey‘ framing helps people pretend that even these awful things have some sort of purpose or coherence or logic because the idea that everyone everywhere exists with the perpetual threat of utterly random, senseless misfortune hanging over them is profoundly unsettling and upends the ordered, managed world we’ve convinced ourselves we inhabit. It’s refreshing to see someone calling it what it is from such a public platform.
I have extended family members w/MS, several people I know. Family member has the worst type. It’s a terrible disease.
I’m so confused that in the excerpt of this book she implies that she wonders if anyone will ever love her. I noticed in her podcast she talks about being alone in her room. I thought she was married?