* Almost three years after the *Die Hard* star was diagnosed [with frontotemporal dementia (FTD)](https://www.eonline.com/news/1421691/bruce-willis-brain-is-failing-him-amid-dementia-battle), Emma shared an update on how their [daughters **Mabel**, 13, and **Evelyn**](https://www.eonline.com/news/1418762/rumer-willis-emma-heming-willis-on-bruce-willis-fathers-day), 11, are navigating their father’s illness.
* “I think they’re doing well, all things considered,” she told *Vogue Australia* in an [interview published Oct. 10](https://www.vogue.com.au/culture/features/emma-heming-willis-on-grief-love-and-dementia-this-is-bigger-than-bruce-and-its-bigger-than-my-story/news-story/1cf17bc4068bd4c8e36e398c39bb3b63). “But it’s hard. They grieve. They miss their dad so much. He’s missing important milestones. That’s tough for them.”
* “But kids are resilient,” she said, before adding, “I used to hate hearing that because people didn’t understand what we were walking through. I don’t know if my kids will ever bounce back. But they’re learning, and so am I.”
* Emma, 47, also shared how she has adapted in the years since Bruce received his FTD diagnosis at age 67 in 2023 after previously being diagnosed with aphasia.
* “I’ve had to learn to walk alongside the grief,” the former model said. “It’s always with me. I can’t shake it, but I’m going to breathe, and I’m going to be sad and all the feelings and emotions that I’m going to feel, but I am also not going to just allow it to be this one note of that.”
* She added, “For me, the grief I feel over what’s happening is rooted in the deep love I have for Bruce and my family. There is so much beauty in that. And here’s the truth: no one in this world will escape grief—it’s a universal part of loving and living.”
BananasPineapple05 on
In French, this is called *le deuil blanc* („the white grief,“ which I swear it isn’t meant to be racist, it just refers to the fact that you’re not putting on mourning clothes) because the person is still very much physically alive, but because of a neurological condition, they are no longer the person you knew. It happens with people with all sorts of dementia, including Alzheimer’s and FTD.
HearTheBluesACalling on
My dad went through this over the past few years, and his decline was so much harder than his actual death. It’s an awful thing to see. And Willis is fairly young to be dealing with this!
BusinessPurge on
That time of the week?
WalterPecky on
Bro enough already. Lol like yeah it’s sad, but why do I have to be constantly reminded of it?
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TL;DR
* Almost three years after the *Die Hard* star was diagnosed [with frontotemporal dementia (FTD)](https://www.eonline.com/news/1421691/bruce-willis-brain-is-failing-him-amid-dementia-battle), Emma shared an update on how their [daughters **Mabel**, 13, and **Evelyn**](https://www.eonline.com/news/1418762/rumer-willis-emma-heming-willis-on-bruce-willis-fathers-day), 11, are navigating their father’s illness.
* “I think they’re doing well, all things considered,” she told *Vogue Australia* in an [interview published Oct. 10](https://www.vogue.com.au/culture/features/emma-heming-willis-on-grief-love-and-dementia-this-is-bigger-than-bruce-and-its-bigger-than-my-story/news-story/1cf17bc4068bd4c8e36e398c39bb3b63). “But it’s hard. They grieve. They miss their dad so much. He’s missing important milestones. That’s tough for them.”
* “But kids are resilient,” she said, before adding, “I used to hate hearing that because people didn’t understand what we were walking through. I don’t know if my kids will ever bounce back. But they’re learning, and so am I.”
* Emma, 47, also shared how she has adapted in the years since Bruce received his FTD diagnosis at age 67 in 2023 after previously being diagnosed with aphasia.
* “I’ve had to learn to walk alongside the grief,” the former model said. “It’s always with me. I can’t shake it, but I’m going to breathe, and I’m going to be sad and all the feelings and emotions that I’m going to feel, but I am also not going to just allow it to be this one note of that.”
* She added, “For me, the grief I feel over what’s happening is rooted in the deep love I have for Bruce and my family. There is so much beauty in that. And here’s the truth: no one in this world will escape grief—it’s a universal part of loving and living.”
In French, this is called *le deuil blanc* („the white grief,“ which I swear it isn’t meant to be racist, it just refers to the fact that you’re not putting on mourning clothes) because the person is still very much physically alive, but because of a neurological condition, they are no longer the person you knew. It happens with people with all sorts of dementia, including Alzheimer’s and FTD.
My dad went through this over the past few years, and his decline was so much harder than his actual death. It’s an awful thing to see. And Willis is fairly young to be dealing with this!
That time of the week?
Bro enough already. Lol like yeah it’s sad, but why do I have to be constantly reminded of it?