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    6 Kommentare

    1. TurtlePowerMutant on

      I mean…. I’ve known more than one person with this and it is ALWAYS the final chapter.

    2. HoarderOfBooty on

      Yeah my mother had it when I was a kid. Let’s just say those last few years ain’t fun for anyone involved.

    3. RustyOuthouse on

      I just lost a friend to ALS. There’s some truth to what he says, in the way that my friend gave other people a chance to carry on and continue part of his story. But yeah, it’s a death sentence, and it’s absolutely horrible.

      RIP to my buddy Brad, and Godspeed to this poor fella.

    4. It is *such* a cruel disease. Brooke Eby is a creator that I follow that was diagnosed in her 20s and has been educating the public ever since. I really wish him and his family all the best.

    5. MagneticThinker on

      I’m praying for him, and thankful that he is shining a light on his journey. It’s such an ugly disease.

      My sister was diagnosed with ALS last year. Before that, I had only heard of it in passing—mostly through the Ice Bucket Challenge. Fortunately, she’s doing okay, aside from no longer being able to walk. We know that can change at any time—and likely will. We remain in shock and brace for the inevitable. It’s a horrible, painfully slow disease.

      One major gripe I want to share: This is the first time someone in our family has been disabled, and it’s eye-opening just how inaccessible the world can be. Buildings, hotels, vacation spots—so many are still not designed for people in wheelchairs. You don’t fully realize it until it affects you directly. Sadly.

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