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    Laut RFK Jr. wird die Autismus -Datenbank Medicare- und Medicaid -Infos verwenden
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    Laut RFK Jr. wird die Autismus -Datenbank Medicare- und Medicaid -Infos verwenden

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    1. antel00p on

      The National Institutes of Health will use information from federal health insurance programs Medicare and Medicaid to create a „real-world data platform“ to determine the cause of autism, the agency announced this week.

      The Department of Health and Human Services said in a statement on Wednesday that the NIH would team up with the Centers for Medicare & Medicaid Services (CMS) to create the database utilizing insurance claims, electronic medical records and data from wearable devices with health sensors, like smartwatches.

      „We’re using this partnership to uncover the root causes of autism and other chronic diseases,“ HHS Secretary Robert F. Kennedy Jr. said in a statement.

      HHS said that CMS and NIH would establish a data use agreement focused on Medicare and Medicaid enrollees — about 36% of Americans — and follow autism diagnoses before expanding their research into additional chronic health conditions.

      „Using ASD [Autistic Spectrum Disorders] as the pilot research program, teams at CMS and NIH will establish a secure tech-enabled mechanism to enhance this data sharing with timely, privacy and security compliant data exchange,“ the statement read.

      There was outrage last month after NIH Director Jay Bhattacharya told his staff of plans to compile a database of Americans with autism using private data that could be used to create a national autism registry.

      Unnamed HHS sources told multiple news outlets that the agencies are not creating an autism registry and described the effort instead as a real-world data platform linking existing datasets. NPR has not independently confirmed the reporting.

      In Wednesday’s statement, NIH’s Bhattacharya said that the partnership with CMS was „an important step in our commitment to unlocking the power of real-world data to inform public health decisions and improve lives.“

      „Linking CMS claims data with a secure real-world NIH data platform, fully compliant with privacy and security laws, will unlock landmark research into the complex factors that drive autism and chronic disease — ultimately delivering superior health outcomes to the Americans we serve,“ he said.

      NPR has reached out to HHS, NIH and CMS, but none responded to requests for comment before publication of this story.

      The latest details immediately raised more alarm bells for the autistic community and privacy experts, who questioned how this data would be used and how patients‘ sensitive data would be protected.

      Helen Tager-Flusberg is the director of the Center for Autism Research at Boston University and leader of the Coalition of Autism Scientists, an organization formed in response to Kennedy’s widely debunked views on autism.

      She warned of the potential for information collected in this database to be abused.

      „CMS data includes certain information about individuals — age/date of birth, sex, where they live. It is possible to identify a person based on knowledge about these characteristics,“ Tager-Flusberg said in an email to NPR.

      „While the NIH Director provides assurances that privacy protections will be put in place, we have seen other examples of how this administration has given permission to identify people to certain people working for the federal government. How will this registry be protected?“ she asked.

      The heightened public focus on autism comes as Kennedy has repeatedly vowed to identify the cause of the disorder and ultimately eradicate it.

      To that end, Kennedy, a former environmental lawyer, has made a number of baseless, conspiratorial claims about autism, including that it can be traced back to childhood vaccinations and that an „environmental toxin“ is to blame for the uptick in autism diagnoses over the years.

      He described autism as „a preventable disease“ and said his agency would find the root cause of the disorder by September.

      The notion that vaccines cause autism has been thoroughly debunked in medical science, and experts say there is likely no single cause for autism. Bhattacharya, the NIH director, pushed back on the September deadline to find a cause and said that a year timeline was more realistic.

      And while a Centers for Disease Control and Prevention report did find that autism prevalence in the United States had increased from 1 in 36 children five years ago, to 1 in 31 children in 2022, it is more likely that this is due in large part to more comprehensive screening across a broader population.

    2. Tyrannical-Botanical on

      Governments making lists of people they consider to be undesirable or subhuman always works out so well for all involved.

    4. Funkymonkeyhead on

      Doesn’t RFJ Jr. have something going on as well? He’s not quite…..right.

    6. SicilyMalta on

      Was this Trump’s May 6 promise of a „very very big announcement.“? Greatest news ever …blah blah blah

      He’s always hyping up shit, delaying it, and often it’s nothing.

    7. windwatcher01 on

      They think they’ll be able to load all this data into a magic AI wand that they’ll wave and be able to (falsely) shout „Vaccines!‘

    8. johnn48 on

      I wonder what kind of Autism badges he will have them wear. I know the Yellow star and Pink triangle have been used before. Didn’t he say they “will never pay taxes, they’ll never hold a job, they’ll never play baseball, they’ll never write a poem, they’ll never go on a date“. Maybe a baseball with a Red slash or some other symbol of a poem, date, or job with the Red slash. I wonder🤷🏻

    9. Deep_Alps7150 on

      RFK isn’t going to like when he gets told by his AI it’s always been around at similar levels to today and is just very under diagnosed in women/older populations.

    12. blazze_eternal on

      And when he finds out many people with Autism aren’t on Medicaid/Medicare?…

    14. Bubbly_Base_1011 on

      As someone on the spectrum, this shit worries me.

      What exactly does this roadkill-eating idiot plan on doing with all of this information?

      This worthless dumbass also seems to think we have „aborted fetus parts“ in vaccines. Fuck him.

    16. oddlyluminous on

      Most public schools have parents mark a box that say you approve the use of medicaid to pay for things like speech therapy or occupational therapy. Does this mean if your child is on the spectrum and has an IEP it’s too late and they’ll be on a list? This is horrifying.

    17. Glad-Attempt5138 on

      Don’t forget to put a yellow star on there clothing since you insist on having a data base. You realize RFK Jr. someone else tried this on the 30’s with another group of people. We all know how that turned out. It’s time for you to drop all this BS.

    19. NeuralNetAIBot on

      It’s a terrible idea because the Government is increasingly fabricating evidence to declare people as being mentally incompetent. For many this has a lot of negative side effects, and it could lead to a point that you find yourself without any basic rights at all, just because you wound up in an autism database at some point. The way the Gov’t uses the DSM, and the way the medical system can be turned against a patient, is something that people need to keep in mind with anything like an Autism registry.

    20. boofles1 on

      Let me guess, he’s going to cross match vaccinations with ASD and say vaccines cause autism.

    21. wftango on

      Can we create a database for generationally wealthy morons who *choose* to eat roadkill for some fucking reason and end up with brain worms? And then…not confirm them as HHS? Jesus Fucking Christ.

    22. thatirishguyyyyy on

      They are really pushing for these camps.

      And the right will joke that these *concentration camps* are literal camps to make people concentrate harder and that the left is just dealing in semantics.

      Fuck this timeline.

    26. Red_Wing-GrimThug on

      Whats next? They’ll look into people who said they’ve had anxiety and other things that get stuck on your medical record.

    30. 6Arrows7416 on

      Genuinely, fuck everyone in government and medicine that’s taking orders from this crusty ass washed up hippie.

    31. neeesus on

      “It will unlock landmark research…”

      Yet MAGA is cutting science and research budgets left and right.

      Fuck out of here

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