Laut Regierung werden medizinische Daten von einer halben Million Briten auf chinesischer Website zum Verkauf angeboten
https://news.sky.com/story/medical-data-of-half-a-million-britons-listed-for-sale-on-chinese-website-government-says-13535387
Von bendubberley_
33 Kommentare
If I buy it will I find out when my appointment is?
its ok though the digital ID thing will never have this happen…
honest
> Professor Sir Rory Collins, chief executive and principal investigator of UK Biobank, said it took the protection of participant data „extremely seriously“ and had tightened security.
>“Last week, we found that de-identified participant data made available to researchers at three academic institutions were listed for sale on a consumer website in China, owned by Alibaba,“ he said.
People should be banned from saying things like they take data protection „extremely seriously“ when they’re giving the data to Chinese academic institutions.
Maybe they’ll figure out why I get random shocks in my limbs and let me know.
>Biobank said „all the data are de-identified; they do not contain any personally identifying information (such as names, addresses, dates of birth, and NHS numbers).“
Also
>data set…measures from biological samples were included.
So they don’t know my name but they can grow a new version of me in a lab because they have my biologics. Phew, for a moment I thought it was something that would concern me.
And the government wants me to give my face when I’m cranking it?
Not sure what some Chinese person is going to do with my eczema diagnosis
And they want us to trust them to keep hold of digital ID
Remind me again why we privatised this? Weren’t there promises that it was safe and data would stay in the UK…
and they wonder why I refuse to do age verification with handing details to a 3rd party company…esp on Xbox when my actual account is 21yrs old, not enough to prove my age
Then politicians wonder why many of us don’t want this digital ID they keep trying to push. A security nightmare waiting to happen.
I was just about to sign a consent form for ‚Our Future Health‘. Maybe I should wait for further details about this to come out.
Only half a million? What about the rest or was this just the sample.txt file they looked at?
Enjoy looking at my sciatica diagnosis there China!
I can’t wait for Social Credit Digital ID so I can be sold in totality!
By any chance is the shop on Alibaba called Palantir?
All they would garner from mine that I have a knackered back and that I need my head testing.
Medical data sharing should be opt in, not opt out.
Patient records are going online (well… in secure systems online), and there needs to be data sharing between trusts within the UK for valid purposes, like if someone moves, or if you’re visiting/on holiday and have a medical episode, having a hospital access all your record instantly from another trust speeds up chart reviews for diagnoses and treatment, etc.
But having third party access, especially with the concern over Palantir lately as well, should be opt-in if it isn’t already. Clinical trials do exist ofc as well, but quite how and how much ended up there should land with a hefty fine from the ICO.
Those fines don’t even result in compensation for the people whose records were breached. Be at least something if you got something for your stuff.
Funny how the Chinese started putting limits on their domestic surveillance exactly because they figured that these huge datasets are an enormous liability due to hacking and leaks.
We can’t be letting the Chinese have our medical info, Wes Streeting has promised it all to Palantir!
Every year there is a globally spectacular privacy leak from the UK government and every year they want a new spy database
Facial recognition-OSA-Afghan collaborators leaked to the Taliban and covered up….
The same Biobank that pledged not to sell volunteer-provided health data to insurance companies, then broke said promise?
https://www.theguardian.com/technology/2023/nov/12/private-uk-health-data-donated-medical-research-shared-insurance-companies
Don’t give away your personal data to private companies. They do not act in your interest.
Not arsed anymore, they already have all my details from a previous data breach.
If they have my medical data, can I visit China for an appointment? Would love to do something about this back pain.
I thought this just said that there was half a million PEOPLE on sale lol
Might be a nice little excuse for Palantir to double down on their NHS stranglehold
Oh cool, I used that datset for my undergraduate dissertation project.
It was literally passed around on memory sticks, im surprised it’s taken this long to be exposed – but it is very well anonymised, they calculate something called K-Anonymity and that dataset is virtually impossible to identify someone from
We all knew this was going to happen ever since NHS started selling out to private companies
This’ll be used as an excuse to deepen ties to palantir.
Great. Now I’m going to get spam emails to sell me powdered seahorse dicks to fix my back pain
I have given my data to the Biobank as part of a longitudinal study. Given the data was anonymised, I’m not overly concerned. The data is used and aggregated for research purposes, you can’t do a great deal of damage with it.
Obviously it’s not a good look though and generally any data breach like this should be treated seriously.
It’ll be used for organ donation, or someones AI in making a British hospital video game
I wonder if my ADHD medication is cheaper from Temu or the high street…